ANN ARBOR, Mich. — For as long as it’s been diagnosed, rare pediatric brain cancer Diffuse Intrinsic Pontine Glioma, or DIPG, has been a death sentence.
It was for Chad Carr, grandson of legendary Michigan football coach Lloyd Carr, and it has been for a handful of families in Michigan.
“For a family to hear those words – and you can’t do anything about it, and you’re just there waiting for the worst to happen,” said Tom Ruddy, who lost his son to DIPG in 2016. “It’s just unacceptable to tell a family that there’s nothing you can do.”
“Anything other than ‘take your kid home and let them die,’ is better. Because that’s more or less the news we were given,” said Ken Buron, who also lost his daughter Emma to DIPG the same year. He and his wife live just a few miles away from the Ruddys.