Category: Amanda’s Posts

Three Years Ago Today

Three years ago today, we lost Tommy to DIPG. It feels like the blink of an eye and a lifetime. As the mom of a child in heaven, I bounce between the past, the present, and the future. I long for what was and dig up memories that give me both joy and sorrow. I … Read More


I’ll forever have two children. I never imagined how hard it would be to be asked the question “how many children do you have?” It’s human Nature, it’s what we do, it’s how we communicate. As moms, as strangers, as parents, it’s how we relate to one another. You see when this question comes up … Read More

Approaching Diagnosis Day

It’s crazy how subconsciously your body knows when a season is present. Definitely feeling in a funk with the upcoming days approaching of diagnosis day and all that prevailed so quickly from there. I don’t even have to try to think about it. It’s crazy what happens to your mindset. This has certainly rocked us … Read More

Facing Another Milestone Without You

This past week we faced another first in our new life without you in our earthly presence… summer camp. As we sent off Isabella to a week of church camp, we were all filled with an overwhelming feat of emotion. More than I imagine the “normal” family to endure. Regardless, it was a week of … Read More

Summer Days

Summer is in full swing with all of the things we used to do with you. We sure miss your precious smile sweet boy.

Father’s Day

Another Father’s Day has passed without you. Another day being incomplete in this broken world. With time we are able to slowly see more joy, but when darkness falls reality sets in and the pain of your absence prevails. We miss you every day Tommy💛

It’s the last week of school

It’s hard to imagine this would be your last week of 2nd grade. You were so anxious to get to kindergarten when DIPG struck our lives. I remember it was the first time you showed any signs of sadness with the disease. When the school bus pulled up to pick up Isabella that first day … Read More

Tommy’s Honorary Enlistment Into the Army

Happy late Memorial Day. I thought it would be appropriate to share a few memories of Tommy’s diagnosis and his love for the US Army. While we were at CHOP, a group of soldiers from the Army came to visit him and provided him with an honorary enlistment into the Army. As you can tell … Read More

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